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Registries and Databases

The United Kingdom Thoracic Surgical Register

1999-2000 Annual Report in Excel format

This register collects activity and mortality data on lung and oesphageal (gullet) surgery conducted in all thoracic surgical units in the UK. Some of this activity is undertaken by general surgeons, but there is no comparative audit.

Download current data forms  Any queries please contact Professor Tom Treasure

The United Kingdom Cardiac Surgical Register

Old Data forms (1977-2001)

The UK Cardiac Surgical Register was established in 1977 and collects annual cardiac surgical activity and mortality data from each NHS cardiothoracic surgical unit. The data includes:

  • All cardiac operations performed in NHS hospitals

  • All NHS or privately funded operations within NHS hospitals

The data excludes all patients operated within the private sector.

Summary data since 1977

 

Unit Results for coronary surgery

Unit specific results for coronary surgery for the financial years 1998/9 to 1999/2000

The National Adult Cardiac Surgical Database

The Society's Recommended Minimum Dataset

The Society recommends that at the minimum this data is collected on all patients undergoing cardiac surgery. The dataset is currently undergoing harmonisation with other similar datasets.

Minimum Surgical Dataset Definitions

The definitions are internationally agreed. It is this agreement that will enable international comparisons in performance

1996 Preliminary report

This was the first report of the pilot national database study. It outlines the responsibilities of different parties in data collection

1998 Report - (PDF Format*)

*Note: To view a document that is in PDF format, you must have Adobe Acrobat Reader installed on your computer. (Download the free Adobe Acrobat Reader.)

   

1999-2000 Report (PDF)

The 160 page report documents the changing trends and steadily improving outcomes following major operations for heart disease and shows:

  • A steady upward trend in the volume and complexity of cardiac surgical workload

  • The spectrum of patients undergoing coronary surgery has changed dramatically over the last six years:

  • The proportion of patients over the age of 70 has doubled

  • The proportion of patients with diabetes undergoing surgery has increased by almost one quarter

  • The proportion of high risk patients has risen by a fifth.

Despite this worsening patient population the overall operative mortality of 2-3% for coronary surgery has remained static over the last decade because the operative mortality for older patients, emergency patients, repeat operations, diabetics and patients with generalised vascular disease has steadily fallen. The previously unexplained higher operative mortality for women may be related to the smaller size of their hearts

Request for access to data

All contributors to the database can request access to the data for analysis and presentation

Download slides

Most of the graphs in the 1999-2000 report have been made into powerpoint slides for free use in presentations.

United Kingdom Heart Valve Registry

History and administration

the UK Heart Valve Registry was established in 1986 to collect details of patients undergoing heart valve replacement. The registry is linked to the Office of National Statistics for long term follow up.

Summary data

The Central Cardiac Audit Database

CCAD

The CCAD is a joint project between this Society, cardiologists and the Department of Health to try to standardise the collection of information collected on patients with heart disease.

The first paediatric report

One of the first areas tackled by CCAD was the collection of data on children with heart disease because our secetion on congenital heart disease in the UK Cardiac Surgica Register had become completely outdated making it somewhat unreliable and of very little use. This is a joint report between the British Paediatric Cardiac Association (BPCA) on paediatric cardiac interventions with mortality tracking through the Office of National Statistics. This is a pdf document and will take about 2 minutes to download

Heart and Lung Transplantation in the UK
Royal College of Surgeons Audit of Intrathoracic Organ Transplantation The National Audit of Intrathoracic Transplantation was established in 1995 to monitor the outcomes of cardiopulmonary transplantation in the UK. The audit is funded by the National Specialist Commissioning Advisory Group (NSCAG) at the Department of Health, through the Royal College of Surgeon's Clinical Effectiveness Unit.

Other Databases

A Proposed Thoracic Surgical Dataset

This is the proposed dataset for co-ordinated collection of data on thoracic surgery across Europe.

Other national and regional databases and registries

Links to the North American cardiac surgical databases.


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   Last revised Apr-27-2003
   Revised by Bruce E. Keogh.
   © 2000 Society for Cardiothoracic Surgery in Great Britain and Ireland.